Monday, December 24, 2012

Update,Autisum diagnosis, long!

Hi y'all! It has been such a long time since I updated. This specific update will be about Kk. Kk was diagnosed with moderate Autism 11/8/12. Wow! Totally unexpected right? Here is some back ground. Last year in August Kk started public school. She had so much trouble adjusting it was crazy. Soon we started getting notes from her teacher about how worried she was that Kk was not adjusting well. She began to notice how Kk did not play with other children properly,Kk's anxiety, running out of the room with her ears covered,not being in engaging, issues demonstrating proper reactions to others feelings,hiding in the bathroom,crawling, playing with soap,screaming,imaginary play. Just to name a few. So it got to the point where it was the middle of the school year and she barely made progress. Kk started to degress big time. She started having potty accidents,nightmares,anxiety, panic attacks, meltdowns the size of TX. While all this was going on we were preparing our house to welcome a new family member. Buddy was born in October and we thought things would start settling down. Nope! Buddy was born with Strider ( super noisy breathing). When buddy was 3 weeks old he became sick. Our Midwife sent us to Cooks urgent care. We arrived and he was given breathing treatments,his oxygen level was low. He was sick! The doctor at the urgent care told us he was going to be transfered to Cook's hospital via ambulance. Hubby took Kk home with him and made arrangements for Kk to spend the night at our friends Lisa and Esequias. While they were gone I stayed with buddy. He and waited for the ambulance to transfer us to the hospital. We were there three days. All this time Kk was away from us. No one was aloud to visit since we were in quarantine. We left the hospital after the 3 ard day in the NICU. When we got home we were all so ready to spend some family time. Lets just a lot of things happened. I will now go back to just talking about Kk. Kk was very excited to have a baby brother. All she wanted to do is talk about the baby. She was adjusting in her own way. Kk had a hard time because she had to share mommy. Which is normal. Forwarding to the beginning of the year. Kk still had not made any progress in school. Infact she was getting worse. The teacher told us that she only I identified 6 letters of the 26 letters of the alphabet. At a parent teacher conference the teacher showed hubby all of the children's work how they had advanced and our daughter had not. Soon the teachers notes sorta stopped and Kk began to use words and do things that we were alittle worried about. I started listening to her play school. She started using words like ignore. We never use that word. She would say of ingnore her. Or mommy I need a straw a shutup straw. What. So we started asking Kk questions about her day. And we were shocked to here about her day.the teacher completely gave up on her and would let her take . Hour naps in class. Kk was left to do her own thing. So we called the school board to see if we could tested her tested. We started the paperwork for the 504. And in the middle of the process we find out that the school has no programs to offer Kk the help she needed academicly. All this time Kk was being treat for pain in her legs. She had a lot of swelling and pain in her legs. As parents we were trying to figure out what was going on. In March Kk got sick. And was sick for almost 2 weeks. She refused to go to school and wanted to stay home with me. So we decided to pull her out of school and start homeschooling all over again. We took Kk out of school in March and we started noticing she was very slowly getting better. She still wanted us to be next to her and go with her everywhere. She refused to go potty unless one of us was there in side the bathroom with her. And refused to be left alone in any area of the house. She was getting better slowly and we were worried about the trauma we had caused our daughter. Meanwhile very well intended people started to tell us how they disagreed with our idea of taking Kk out of school. We were told you just need to spank her more. Family and friends were giving us advice on how to raise her. How our decision was wrong. But we pressed on. We started seeking more medical advice. Our doctor was very helpful. She gave us some really good tips on how to handle our situation. She told us to pray and ask for wisdom and gave us sound Biblical advice on how to handle our situation. In late March hubby started feeling sick. Really down,no motivation what so ever. He felt so bad. I called our doctor and told her hubby might be depressed. This started us on a long journey that lasted 3 months with Kevin not being able to work and in an out of hospitals. Lets just say yup here we go again. In June Kevin was finally given the ok to incorporated himself back to work slowly. So it was another huge change since Kk had gotten used to daddy being home. It was going to be a change for all of us allover again. Kevin was going back to work and I was at home with my two babies. Things started to finally settle down this time. We found a homeschooling group near where we live and started attending. We loved it. In July we bought our first curriculum with an accredited school. We choose Abeka academy online video streaming accredited program. School was scheduled to start July 30. We were so excited to start. Kk was very excited do start. We started her in in K5. Soon I started to notice she was having some issues learning. She would have major meltdowns,she would get stuck on one specific item. If it was not perfect she would erase till she put a hole in her paper. We had good days and bad days. I felt lost somedays since I felt like I was falling her. I could not make her confident, I could not change the way she felt or the anxiety she would get at trying something new. All this was happening to Kk and we were dealing with family making us feel awful because Kk was suppose to be in school. We decided to look for a behavior specialist. Kevin found a pediatrician who is a behavior specialist. It was very hard to find a specialist that was not tied to anyone district or group. We called and scheduled our first appointment. They sent us a online forum that we had to fill out. They also sent one a for Kk's teacher to fill out. Since we were homeschooling we asked if it was ok for Michelle who is Kk's godmother to fill out the forum. They said of course. So we answered all the questions online and pressed send. On the day of our appointment Kevin went with us. While Kk and Buddy played the doctor spoke to us. He went down the list and put everything in categories for us. At that appointment we felt like we were FINALLY getting somewhere. Dr. Mike told us that Kk had autism, she also had anxiety. He explained to us all about her autism. We went home and told family about what the specialist had told us. Still no one really understood. Dr. Mike recommended homeschooling for Kk. He said with her type of Autism she would do better if she was homeschooled. What! Yes! Which totally made the family really him (NOT). The evaluation is done in 3 parts. We scheduled Kk's second evaluation with his child psychologist. We had a two hour appointment with her. Kk loved it. They played games,they talked,she observed Kk playing,interacting. Once we were done. Dr. Mike came to say hi and we left after making sure our next apt was still on schedule for the following week. I called my mother in law to see if she could come and take us to the apt since Kevin could not miss another day of work. She agreed to come and help with buddy while Kk and I focused on the appointment. Since we knew my mother in law would going to the apt Kevin emailed our doctor and told him everything his mother believed/ thought about all of this. On the day of the apt we arrived at the apt and my mother in law was going to leave with buddy to the mall. When the Dr told us they were ready for her. So I told her that the Dr had everything ready for her and buddy to stay. So she came in. At the apt Dr. Mike introduced himself. He tested Kk and did his evaluation. Next he began to go down the list and explain to us the results. I asleep my mother in law if she had any questions and she started asking. She asked him what he thought of the school's in our area. He said that they all sucked. They would help with one thing but not the other. They made a joke how if there is money after the football program is set then they will consider meeting some students needs. With Kk she is high functioning Autism aspie pretty much. He explained that for Kk's needs the schools would not meet her needs. She then asked him about his degree. And they talk for a bit. He explained to her how unfortunate for kids like Kk how they fall threw the cracks. After they were done we said our goodbyes and he gave us our copies of the diagnosis.

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